The NAM was working so well for Edmund, well that is until last week. He had a reaction to the tape holding in the NAM and so the nurses suggested we leave it out for a couple days. So we did and his cheeks healed up nicely. When we went to put it back in it didn't fit. We called Children's for advice and they told us to just try again. We tried again and all it would do is fall out and choke him.
Now we went from 12mm last week to 14mm this week so the gap has gotten wider. They advised us today to try putting it back in every day this week and if that doesn't work we will have to get a new mold of his palate made and get a new appliance made. If we have to have a new appliance made that would push Edmund's surgery back even further. We have already pushed it back once because of the cleft.
I know this is what we need to do to make the surgery go better and his recovery be easier. I just feel that I am failing him. I'm just so ready for this first surgery to be over because then we won't have to deal with the NAM anymore.
