So I went to a graduation party today and I got three hugs from different people.
I have fibromyalgia...which basically means I hurt all the time and it is even worse when people touch me. Most days my FI can't even touch me. On top of that I have rheumatoid arthritis. So back to the graduation thing...the three hugs I got really shot my pain up...a lot.
Now to my question..how can I manage to not get 50-60 hugs on my wedding day? My mom and FI had the bright idea to just put it in the program...yeah not liking that idea. So I told them I would ask you

So..thoughts?Opinions?Suggestions?

Robby James born 2.24.12 @ 23 weeks due to preterm labor
Remembering Robby
Re: WR Question
I hope the pain subsides
I think that will do? Maybe?
Vacation with Alix, Andy, Mandy, and FLORENCE. AND HER MACHINE.
The Margarita Evolution
But seriously, are there a lot of people who know about it already? Because that might make it easier.
Also, ditto everyone else. Don't do the receiving lines, go table to table during dinner, people might not get up to hug you then.
Then your DJ could make an announcement REMINDING everyone not to hug you. It'll be great.
(That was all written in sarcasm font)
I hope things get better for your Barbie. You're such a sweetie!
Vacation with Alix, Andy, Mandy, and FLORENCE. AND HER MACHINE.
The Margarita Evolution
Not many people know...it is still all pretty new and embarassing to me.
My FI has threatened to have a friend stich on my veil "Do not touch the bride"
Remembering Robby
[QUOTE]You should totally have the officiate an announcment before the ceremony starts. "Please to be not touching the bride. It causes her pain." Then your DJ could make an announcement REMINDING everyone not to hug you. It'll be great. (That was all written in sarcasm font) I hope things get better for your Barbie. You're such a sweetie!
Posted by mkrupar[/QUOTE]
My dad is the officiate so I am <em>slightly </em>worried about that actually happening...hahah
Remembering Robby
Not everyone will read the wedding program. So I think a short announcement before the ceremony, perhaps by your officiant or parent, or someone close will eliminate some of the possible hurt feelings from a rebuffed hug, limit your explanations, and prevent you hurting too much on your wedding day.
A short announcement does not have to specify which medical condition you have, especially if you're a private person. It could go something like:
"We're so pleased you're all here today, and Barbie 92 and her FI and happy to be sharing their wedding with you. I did want to take a moment to inform you, however, that the bride has a medical condition where hugs can be painful. She's happy to take handshakes, kisses on the cheeks, and other well wishes. We'll be starting here in another few minutes--and believe me, the bride looks radiant!"
...or something like that...
Or maybe nothing like that... I've had a couple o' beers after all.
[QUOTE]You could do the European thing and do the kiss on the cheek instead. I think the handshake might come across as overly formal, even snobbishly distant if people don't understand that you have fibromyalgia (how awful, btw!). People WILL want to hug you on your wedding day, so you're right to anticipate this ahead of time. Not everyone will read the wedding program. So I think a short announcement before the ceremony, perhaps by your officiant or parent, or someone close will eliminate some of the possible hurt feelings from a rebuffed hug, limit your explanations, and prevent you hurting too much on your wedding day. A short announcement does not have to specify which medical condition you have, especially if you're a private person. It could go something like: "We're so pleased you're all here today, and Barbie 92 and her FI and happy to be sharing their wedding with you. I did want to take a moment to inform you, however, that the bride has a medical condition where hugs can be painful. She's happy to take handshakes, kisses on the cheeks, and other well wishes. We'll be starting here in another few minutes--and believe me, the bride looks radiant!" ...or something like that... Or maybe nothing like that... I've had a couple o' beers after all.
Posted by becunning2[/QUOTE]
KUI is hard. I get where you're going with this, but it could come off really bad.
Remembering Robby
Are you taking Lyrica for the FM?
Remembering Robby
I'm taking something else until my hip has healed
I've got "suspected" fibromyalgia and for various reasons, I won't let the doctor pursue that diagnosis right now, but I understand what it's like to be in constant pain, although my pain is nowhere near your level. I've heard lyrica mostly sucks and not that many people have a good experience with it.
Remembering Robby
KJB- I know there isn't a reason, but its just all so new and there are lots of people who are doubting me and the pain I am in.
Remembering Robby
JK, but seriously. Skip the receiving line. And I'm sorry you're in so much pain. Before I came to TK, I was on TN for a long time. There is a girl over there, on the Pets board, her SN is dixieandindy. She's in her early 20s and her situation is similar to yours. If you were to lurk on Pets for a little bit, you'd find her.
[QUOTE]OOT- What happened to your hip?
Posted by barbie92[/QUOTE]
I had surgeron in January to repair a torn abductor tendon. I'm down to just one crutch now, seeing the surgeon on 5/31 to see what's next
Remembering Robby
Remembering Robby
[QUOTE]I think my mom, dad, FI, brother, and MOH will try to spread it around. They are all really protective of me. I just feel bad not hugging people when they lean in for one..hopefully it will all work out.. KJB- I know there isn't a reason, but its just all so new and there are lots of people who are doubting me and the pain I am in.
Posted by barbie92[/QUOTE]
Unfortunately, I have found there is a huge stigma with the diagnosis. Very, very unfortunate for those who are suffering.