He made an initial diagnosis of atypical absense seizures. Atypical because she does this lip smacking thing during the seizures. He induced one by having her blow on and watch a pinwheel. It made me sad to see her slip into that. We have an EEG appointment on the 16th to confirm.
It's genetic, probably from my side since he seemed interested in my migraines and my little sister having a type of seizure when she was younger.
She will have to go on medication for it and stay on it for about 2 years. After that she will be retested and should have grown out of it. The meds will prevent them but if she has a growth spurt (it's dosed based on weight) or we miss a dose she could have one occasionally. It shouldn't progress into grand mal seizures since it started so young. This assumes the first medicine we try works and doesn't have any side effects.
He says without meds it would get worse and the seizures would eventually take a toll. Also she would have trouble learning because she has them so often. Probably up to 100 times a day. We just don't notice them all and since she doesn't remember those chunks of time she doesn't notice them either. The meds may make her seem hyper but it's just returning to normal. Each seizure is such a workout for the brain that she is probably more tired than she would be.
Until after her appt and after she gets on medicine she can't ride a bike, swim or play in the bathtub alone. Basically anything that could be dangerous should she have a seizure because they just paralyze her.
I held it together in the doctors office but kind of lost it in the car. I worry about her not learning or feeling different because she has to take a medicne. I worry that it's my stupid genes fault that she has this or that the doctor is wrong and she will have a more serious form of epilepsy later. Hormones + something wrong with my baby=hot mess. Of course I didn't let her see any of this.
Anyway, I guess we just deal with it as it comes and hopefully we find the right medication to start off with.
And omg, Ww. I lost it again reading that. Boo x a million for today.