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Trying to cope with family member's mental illness... (sorry so long!)

I guess I really need to unload. I'm sensing that FI is starting to feel dragged down a bit and I don't want to do to him what the situation is doing to me, so...

My sister has been emotionally unstable her entire life. When she had her first son two years ago, something happened hormonally and she shifted from emotionally unstable to suffering from a severe mood disorder and psychosis. It has progressed from bad to worse, and now it is at the point where she has psychotic episodes on a daily basis.

This is taking such a toll on my family and me, and I feel like I'm living through this with her. Just this week, I had to listen to her casually talk about suicide like it was NBD, cry on the phone about whether or not she should go to class, and double over in pain from being violently ill (she is suffering pysical effects from all of this as well).

She is seeing a psychiatrist, a therapist, a gastroenterologist, an ob-gyn, and numerous other specialists to deal with all of the problems she's having. Her doc put her on an antipsychotic that seemed to be well-tolerated in her body, but then last night she suffered the worst event yet. She reacted badly to the medication and was rushed to the hospital with neuroleptic malignant syndrome. Basically, her speech became slurred, her tongue swelled up, and she was temporarily paralyzed.

I'm becoming terrified that this illness will ruin our family. I hate that her sons have to watch her go through this (although we shield them from it as much as possible). Both my stepdad and I had to leave work hours early last night to watch the boys so my mom could take her to the hospital. This was not thefirst time I've had to take personal calls at work or leave work for something like this. I've had to cancel plans with friends. I've stopped going to the gym on Tuesdays because she needs me to come over and watch the boys while she rests. She calls me first thing almost every morning to say she needs me, when can I come over. I feel like I need to be on call 24/7 in case she has an episode. My mom is going through the same thing with her.

So far people have been understanding towards me, our mom, our stepdad, and her husband. But I'm honestly scared that I will lose my job if things like this keep happening. People will only be understanding for so long until they begin to think it's an excuse.

I'm even more terrified about the prospect of her not getting better. I've been convincing myself she is getting better, just to keep my sanity, but I just end up going home and crying every day because aside from FI, she is the most important person in my life, my absolute best friend in the world. She's just falling apart and so am I. It's taken the joy out of everything.

I'm grateful on her behalf that she has people in her life who would do anything for her. I have nightmares about what would happen to her sons if her husband ever left her and she suffered another episode like last night, and absolutely no one in the family could take the kids.

I'm sorry to unleash all of this upon you all. If you read this far, I appreciate it.

CN: Sister is extremely mentally ill. Thoughts and prayers, please. And if anyone has experience dealing with a family member with a mental illness, it would help immensely if you could give me some tips or just share your experience and how you got through it.
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Re: Trying to cope with family member's mental illness... (sorry so long!)

  • I'm so sorry. I wish had some super helpful advice. I'm sure her therapist has seen other families go through difficult stuff, maybe he/she has suggestions of resources/ways to cope.

    Also where is her husband in all this? Why isn't he watching the kids on Tuesday nights/when she's in the hospital?
  • In Response to <a href="http://forums.theknot.com/Sites/theknot/Pages/Main.aspx/wedding-boards_chit-chat_trying-cope-family-members-mental-illness-sorry-long?plckFindPostKey=Cat:Wedding%20BoardsForum:14Discussion:938189d7-5bc8-4717-b45e-8bdf03089dd6Post:07af9569-261e-4cd6-9457-182363ffcc4e">Re: Trying to cope with family member's mental illness... (sorry so long!)</a>:
    [QUOTE]I'm so sorry. I wish had some super helpful advice. I'm sure her therapist has seen other families go through difficult stuff, maybe he/she has suggestions of resources/ways to cope. Also where is her husband in all this? Why isn't he watching the kids on Tuesday nights/when she's in the hospital?
    Posted by sister2groom[/QUOTE]

    Thank you for the kind words. It feels better just having someone acknowledge it. :)

    My BIL unfortunately works 70-hour weeks right now because he wants my sister to be at home with the kids and because they're trying to save mega amounts of money so they can pay off their house. Last night he was not in a position to leave work, but I was a bit more dispensable because there were other people at my job who could take over what I was doing.

    I feel so bad for him because he usually has to hear about what is going on, but isn't in a position to do anything about it. Him leaving work would literally mean the restaurant would have to close for the night, which would not fly with his boss.
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  • I'm very sorry you are going through this, I understand how hard it can be. My advice, and I hope you don't take it the wrong way, is that you also begin seeing a therapist. It can be really important in these situations especially if there might be a bit of codependency going on. As hard as it is, you need to take care of yourself first; if you don't, you won't be able to take care of your sister among many other things. HTH
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  • Angele, you took the words out of my mouth. Or monitor. Whichevs. I would also tihnk about family therapy, since this has to be hard on all of you.

    Ali, I'm so sorry. It must be absolutely devastating and draining watching someone you love so much fall apart like this. The good news is, she is getting help. I hope you're able to as well, even if it's just an evening where you can relax with your FI.

    If you get a chance, check this out: http://www.helpguide.org/mental/burnout_signs_symptoms.htm You may find it helpful.

    Sending good vibes your way!
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  • I wish I could hug you.  My heart breaks for you because I know how hard this is.

    Growing up, my sister suffered from bipolar disorder and there are no words to describe how hard it was for our family to deal with.

    Please take the advice of a PP and find a therapist or support group for yourself.  When my sister was going through her issues I participated in a family support group that we were referred to by her psychitrist and it was hugely helpful.

    If it's not too wierd, PM me and I'd be happy to give you my phone number if you need to vent to someone - I know it's hard to unload on friends/family some times.

    *virtual hug*
  • I am so so sorry that you're dealing with all of this on a daily basis. That must be very difficult. I agree with the ladies who have suggested that you find a support group or go for counselling yourself.
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  • I feel so lucky right now to be on the receiving end of all this love and support. :) Today she has called me like nineteen times, but I'm trying to take it in stride. Wedding planning and these boards are my solace when I'm not at work or with FI. I totally agree that I should talk to someone--I wish I had insurance for a therapist. A support group sounds like the best option. I hadn't even thought of that. I just need to try and learn not to carry her whole burden on my shoulders... I will definitely update everyone and I really appreciate the kindness you have all shown me. Thank you!
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  • Ali, I'm awfully sorry for everything you and your family has gone through. I know it is the worst to see someone you love hurting and there is nothing you can do about it but... pray.

    My fiance has bipolar disorder, and just recently (last Halloween) had an episode. It was really bad. He has type 2, so instead of just bad moods here and there like some people *think* it is, you lose control of your mind. It's some crazy stuff, he was in a psychiatric ward for 2 weeks and I was a wreck. I know his mental illness is nothing compared to what your sister is going through, but like PPs have said, others are going through similar situations and can help or give you a shoulder to cry on.

    I think accepting it and learning about it is a great tool and release. It seems in your post that docs don't know what is wrong with her or you didn't say. But if there is anything that you know of that you can read up on to wrap your head around it. Knowledge is a powerful thing. A friend of mine suggested a book from Patty Duke, an actress who suffered from Bipolar Disorder. Reading that and other books was such an eye opener because it's almost like you know how they're feeling. Now I know what to look for and how to react when things happen.

    Good luck, I hope everything falls into place and all your pain, and your sister's, is gone soon.
  • In Response to <a href="http://forums.theknot.com/Sites/theknot/Pages/Main.aspx/wedding-boards_chit-chat_trying-cope-family-members-mental-illness-sorry-long?plckFindPostKey=Cat:Wedding%20BoardsForum:14Discussion:938189d7-5bc8-4717-b45e-8bdf03089dd6Post:f6db80a2-5c5b-469e-aa82-4f7e179e1dd3">Re: Trying to cope with family member's mental illness... (sorry so long!)</a>:
    [QUOTE]I'm so sorry your family is going through this - and even more so for your sister. There are many, many support groups out there for family members of mental patients.  Please find one.  Having her home with the kids may add to her depression, and the kids aren't safe with just her.  I'm sorry to say this - but think Andrea Yates here.  Why the heck does he want her home with the kids? Please get help for your entire family.
    Posted by RetreadBride[/QUOTE]

    Agreed. Right now, my two year old nephew is in daycare four days a week to try to take the pressure off of her (and keep everyone safe). My other nephew is five months old and he stays home with her. But we have not left her alone with him since the situation progressed and she is no longer allowed to drive them anywhere. Luckily, my grandmother recently moved in with my parents and they live less than a minute away from my sister, so my grandmother walks over in the morning after my BIL has left for work and keeps an eye on things if my mom or I can't spend time with her. But that's not ideal either, since my grandmother can't drive and isn't physically able to take care of young children.

    My BIL is strongly considering getting another day off so he can be home with the kids--but she obviously can't work in her state, so the money has to come from somewhere.

    The last thing we want is for something to happen to her or the boys, and if it means work changes, scheduling shifts with her, whatever, we're willing to do it. Which I guess is why it's taking such a toll on me. We USED to be best friends. We know everything there is to know about each other. I miss the sister I used to take road trips with, make stupid mix CDs for, force to do my make-up and hair... I just feel like she's not even the same person. It hurts so, so badly.

    Again, thanks to everyone.
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  • In addition to PPs suggestions to find a therapist of your own, I'd recommend finding out if your area has an active NAMI chapter and contacting them. NAMI offers a lot of different resources and supports for family members of people with mental illnesses.
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  • Positive thoughts and prayers sent your way.
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  • I am so, so, so sorry that you and your family is going through this. I wish I could offer you some great advice, or even say that I know the pain you're in, but I can't even begin to attempt to understand what you're going through. I agree with PPs, in that you should think about seeing someone, as well as with your family.

    Sending lots and lots of good vibes your way! I hope everything works out for the best.
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