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Wedding Woes

I wouldn't see my sister until she could keep her trap shut.

Dear Prudence,
I’m in the process of becoming a living kidney donor for a stranger on the organ donation waiting list. Everyone in my life has been very supportive except my sister. She first asked if I’d joined a cult, then told me that I was taking a massive risk (I’m not), and said she “would be more shocked if you said you were moving to Africa for a mission.” I told her that she was being absurd, and that if she didn’t want to talk about it I would keep her out of it. She claims to be supportive, but sent an incredibly condescending email saying that she understands why I “especially” would be interested in doing this, that she doesn’t “espouse the moral philosophy” that this is a good thing, and said there were “other things you could do that would have more impact.”

I expected most people to be neutral or supportive—her vehemence has taken me by surprise and somewhat deflated my enthusiasm, although I’m still going ahead with it. The problem is that I’ll be seeing her in a few weeks for her birthday, along with my parents. I’m concerned that I’ll have a strong reaction to anything she says to me on this topic, and she’ll act like I’m being ridiculous since she’s now claiming (disingenuously, it seems to me) to be supportive of my decision. Should I talk to her about this ahead of time? Send her an email with my position? Just clam up when we see each other? We have a great relationship otherwise, and this is really making me dread seeing her.

—Sister’s Kidney Troubles

Re: I wouldn't see my sister until she could keep her trap shut.

  • If sister starts talking bad about the decision to donate, I'd not so gently remind her that I'm saving a life.


  • This is sister's problem, not LW's. But, isn't required or recommended counseling part of living organ donation? Sounds like the perfect opportunity to bring that up. 

    Side note: the fact that sister isn't enthusiastic has "deflated the enthusiasm" would concern me a bit. Is other people's support and recognition a part of why LW is doing this?

    I am close to my sisters. If I was making a decision of this magnitude and they shit all over it (to the point LW's sister has), I would definitely be upset and feel a bit deflated.  Would I change my mind?  Probably not, but there'd definitely be some 'nagging' in the back of my head about it.  

  • mrsconn23 said:





    This is sister's problem, not LW's. But, isn't required or recommended counseling part of living organ donation? Sounds like the perfect opportunity to bring that up. 

    Side note: the fact that sister isn't enthusiastic has "deflated the enthusiasm" would concern me a bit. Is other people's support and recognition a part of why LW is doing this?


    I am close to my sisters. If I was making a decision of this magnitude and they shit all over it (to the point LW's sister has), I would definitely be upset and feel a bit deflated.  Would I change my mind?  Probably not, but there'd definitely be some 'nagging' in the back of my head about it.  


    That's true. And I would definitely be disappointed that she didn't support me, and probably hurt that she felt the need to keep harping on it; but (and maybe I'm reading something into the letter) it sounds like she wants everyone to be super, happy, jazz hands excited about what she's doing, and now that sister has expressed doubts, she's less excited? I don't know, I just think my feelings would be more sad/hurt/disappointed that sister wasn't supportive of me, not less excited to do the thing I want to do. Maybe that's a difference without a distinction, though. 
  • Serious question - does this mean LW is on a list that if someone needs a kidney, LW will willingly donate while alive?

    I'm not sure we have this in Canada, we have organ donations but that's after a person has passed to donate.


  • This is sister's problem, not LW's. But, isn't required or recommended counseling part of living organ donation? Sounds like the perfect opportunity to bring that up. 

    Side note: the fact that sister isn't enthusiastic has "deflated the enthusiasm" would concern me a bit. Is other people's support and recognition a part of why LW is doing this?


    I think that's a good point, but at the same time, I get how LW would feel that way. When I finally figured out my career path I was really excited. I had been floating around feeling rudderless for years. Then I had a path and I knew I was going to finish it. My ex was super negative about it and while I didn't need his validation to know what I was doing was right, it really felt like the wind had been taken out of my sails, so to speak. If LW is doing this for the pats on the back, that's bad, but if she's just feeling hurt because of constant negativity, I think that's totally understandable. 

    Also....most mission trips do more harm than good...so LW's kidney donation is actually the better thing to do. 


    image


  • Serious question - does this mean LW is on a list that if someone needs a kidney, LW will willingly donate while alive?

    I'm not sure we have this in Canada, we have organ donations but that's after a person has passed to donate.


    I think she already has a person she's donating too.






  • Serious question - does this mean LW is on a list that if someone needs a kidney, LW will willingly donate while alive?

    I'm not sure we have this in Canada, we have organ donations but that's after a person has passed to donate.




    I think she already has a person she's donating too.


    Ohh okay!












  • Serious question - does this mean LW is on a list that if someone needs a kidney, LW will willingly donate while alive?

    I'm not sure we have this in Canada, we have organ donations but that's after a person has passed to donate.






    I think she already has a person she's donating too.




    Ohh okay!


    But yeah, she's on a list of organ donors. A friend of mine did this and just recently donated bone marrow. She was chosen from a list. 
  • levioosalevioosa member
    Knottie Warrior 5000 Comments 500 Love Its 5 Answers
    edited May 2017




    Serious question - does this mean LW is on a list that if someone needs a kidney, LW will willingly donate while alive?

    I'm not sure we have this in Canada, we have organ donations but that's after a person has passed to donate.




    Live kidney and liver donations are a thing.  Your liver regenerates (yay) and you have two kidneys.  Usually live donations are made in the case of a family member being a match, because it's pretty altruistic to give up a body part to a random stranger.  You can do directed donation as well once you are deceased, but if you are a donor without it (which is most of the time), your body goes to the most critical (top) of the transplant list.  

    ETA: there are other things you can donate while alive (per DSC), I was just specifying organs. 


    image




















  • Serious question - does this mean LW is on a list that if someone needs a kidney, LW will willingly donate while alive?

    I'm not sure we have this in Canada, we have organ donations but that's after a person has passed to donate.








    I think she already has a person she's donating too.






    Ohh okay!




    But yeah, she's on a list of organ donors. A friend of mine did this and just recently donated bone marrow. She was chosen from a list. 


    Ahh okay. I know a few people who donate bone marrow - M's cousin does it regularly - but I'm not sure how popular the live organ donation is in Canada.






























  • Serious question - does this mean LW is on a list that if someone needs a kidney, LW will willingly donate while alive?

    I'm not sure we have this in Canada, we have organ donations but that's after a person has passed to donate.










    I think she already has a person she's donating too.








    Ohh okay!






    But yeah, she's on a list of organ donors. A friend of mine did this and just recently donated bone marrow. She was chosen from a list. 




    Ahh okay. I know a few people who donate bone marrow - M's cousin does it regularly - but I'm not sure how popular the live organ donation is in Canada.


    Honestly, it's a shame that more people don't donate. There are so many people on the transplant list that die while waiting for a new organ.  But giving up a body part is serious, and it's understandable that most people wouldn't be all "go ahead and take one!" I personally only have one mostly functioning kidney, so I'm just praying science doesn't completely die before stem cell research has reached a point where they can grow me a new one. I don't have high hopes for my kidney's future. lol.  


    image
  • I had a previous coworker donate bone marrow for a stranger.

    I'm not excusing the sister's behavior.  She has gone way too far.  But I would be VERY concerned if a living loved one wanted to donate a kidney to a stranger.  I would definitely have a number of conversations about the decision with them and discuss potential complications.

    I have no doubt this is a fairly safe surgery, as surgeries go.  But it is still a major surgery and there is always a risk with that.  And the LW seems a bit flip about the REAL dangers she could be facing.  Not to mention, you just don't know what kind of hand life is going to give you.  Bad things can happen to kidneys and, if you only have one,  it is that much more risk. 

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  • SP29SP29 member
    Sixth Anniversary 2500 Comments 500 Love Its 5 Answers






























    Serious question - does this mean LW is on a list that if someone needs a kidney, LW will willingly donate while alive?

    I'm not sure we have this in Canada, we have organ donations but that's after a person has passed to donate.










    I think she already has a person she's donating too.








    Ohh okay!






    But yeah, she's on a list of organ donors. A friend of mine did this and just recently donated bone marrow. She was chosen from a list. 




    Ahh okay. I know a few people who donate bone marrow - M's cousin does it regularly - but I'm not sure how popular the live organ donation is in Canada.


    I'm not sure exactly how it works here. I've not heard of a living donor list (like when you get your driver's license they ask if you want to register as an organ donor, but that is post death), but it does happen. Usually they try to get a family member to donate. But I have seen public requests for people to get tested if they are willing to donate bone marrow to a particular stranger.

  • SP29 said:



    I'm not sure exactly how it works here. I've not heard of a living donor list (like when you get your driver's license they ask if you want to register as an organ donor, but that is post death), but it does happen. Usually they try to get a family member to donate. But I have seen public requests for people to get tested if they are willing to donate bone marrow to a particular stranger.


    In the U.S., there is a bone marrow registry that people can sign up on, if they are willing to donate.  My coworker who did it was on the registry for years before he was the right match for someone.

    However, to me, a bone marrow donation is very different from a kidney.  I believe that bone marrow grows back over time and it is a FAR less invasive surgery.  For the donor, I'm pretty sure it is an outpatient surgery.  My coworker only had to be off work for 2-3 days.

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  • I'm on the Canadian bone marrow registry and they also know that I would be willing to consider donating liver or a kidney. It was just a check box that I ticked when I did the matching for the marrow registry.

    My friend got called but ended up failing some of the matching that needed to happen. She said the process made her nervous but she would go through it again to help someone.


  • ernursej said:

    I'm on the Canadian bone marrow registry and they also know that I would be willing to consider donating liver or a kidney. It was just a check box that I ticked when I did the matching for the marrow registry.

    My friend got called but ended up failing some of the matching that needed to happen. She said the process made her nervous but she would go through it again to help someone.



    So is it only an option if you're on the marrow registry?
  • I just looked into becoming a bone marrow donor and it actually costs the donor to get added to the registry! I mean, it's not a huge amount ($45-$96) but still...you'd think that'd be free.


  • I just looked into becoming a bone marrow donor and it actually costs the donor to get added to the registry! I mean, it's not a huge amount ($45-$96) but still...you'd think that'd be free.


    I was on it until I got pregnant. I signed up for free through Be The Match. They had a registry event at Gillette Stadium 4 years ago and it was super easy to get swabbed and get registered. Check with them to see if they have any upcoming events in your area.






  • I just looked into becoming a bone marrow donor and it actually costs the donor to get added to the registry! I mean, it's not a huge amount ($45-$96) but still...you'd think that'd be free.




    I was on it until I got pregnant. I signed up for free through Be The Match. They had a registry event at Gillette Stadium 4 years ago and it was super easy to get swabbed and get registered. Check with them to see if they have any upcoming events in your area.


    I did and they do!

  • *Barbie* said:

    Another option for getting on the Bone Marrow registry:
    http://www.dearjackfoundation.org/

    My favorite singer,  Andrew McMahon, was diagnosed with leukemia in the mid-2000s. Fortunately his sister was a match and he was able to get a bone marrow transplant that ultimately saved his life. He's 11 years cancer-free. As a result of his experience, he started the Dear Jack Foundation, and always has a station for bone marrow registry at his shows. He was in town a couple of weeks ago and said that they've managed to make 70+ matches as a result of the foundation, and have had more than 40 people that have received a donation and are in remission/recovering.


    I love him!




  • ernursej said:


    I'm on the Canadian bone marrow registry and they also know that I would be willing to consider donating liver or a kidney. It was just a check box that I ticked when I did the matching for the marrow registry.

    My friend got called but ended up failing some of the matching that needed to happen. She said the process made her nervous but she would go through it again to help someone.





    So is it only an option if you're on the marrow registry?


    I'm not sure. I started with the bone marrow and that was my link.




    I just looked into becoming a bone marrow donor and it actually costs the donor to get added to the registry! I mean, it's not a huge amount ($45-$96) but still...you'd think that'd be free.



    The Canadian version was free.

  • ernursej said:








    ernursej said:



    I'm on the Canadian bone marrow registry and they also know that I would be willing to consider donating liver or a kidney. It was just a check box that I ticked when I did the matching for the marrow registry.

    My friend got called but ended up failing some of the matching that needed to happen. She said the process made her nervous but she would go through it again to help someone.







    So is it only an option if you're on the marrow registry?




    I'm not sure. I started with the bone marrow and that was my link.






    I just looked into becoming a bone marrow donor and it actually costs the donor to get added to the registry! I mean, it's not a huge amount ($45-$96) but still...you'd think that'd be free.





    The Canadian version was free.



    The second site I went to was free, but they suggest a monetary donation of $100.
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