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Please pray for FFIL...Update (Sort of)

For the last couple months, our lives have been turned upside down.
It all started back in March, FMIL came with us to book the rehearsal dinner location and left FFIL at home. She said he wasn't feeling well, and the doctor thought he had IBS (which he had once before). She said he had bad diarrhea and couldn't leave the house long enough to come with us. But she also downplayed it quite a bit, we learned to find out. They live about an hour away from us, so we typically didn't see them that often, but also didn't think much of it. When FI talked to his mom a few weeks later, we learned his dad still wasn't feeling well, and the medication the doctor had prescribed, wasn't helping. Weeks went by, and the doctor wanted him to go in for a colonoscopy, but he couldn't leave the house long enough without having to go to the bathroom. We eventually learned that he was barely eating anymore, had become VERY dehydrated and weak and was lying in bed all day. By this point, this had been going on for almost 2 months!! FI finally convinced his mom to bring his dad to the hospital.

When he was admitted to the hospital, the nurses said they had never seen someone that dehydrated before. They did some tests and saw that his appendix was enlarged, so they did emergency surgery and removed his appendix. After that surgery, he seemed a little better, but they still hadn't determined what was wrong with him. It took awhile for him to recover from that surgery, before he was strong enough for them to do a colonoscopy on him. At that point, they diagnosed him with ulcerative Colitis. That can be treated with antibiotics and steroids, so they put him on them, and eventually got him up on his feet again. He was barely walking though, because he had been bed ridden for so long, so they sent him to a physical therapy type place for 10 days.

They got him walking again, and sent him home, but he still wasn't eating right, and he was still going to the bathroom a lot. It seemed that the medication wasn't really working. Then one night, he woke up FMIL screaming in pain, and collapsed on the floor. She rushed him to the emergency room that night, and he was admitted to the hospital again. They performed emergency surgery on him the next morning to find out was wrong.

They ended up finding 3 holes in his colon. They weren't able to repair it, and they had to remove his colon, and he now has a colostomy bag (which he really didn't want). After that surgery, he was extremely weak and out of it. Two days later, after a routine test, they saw something they didn't like, so they opened him up to make sure nothing was leaking. Luckily, they didn't find anything wrong that time, but put in a drain to be safe, and hopefully help the wound heal faster/better this time.

After that surgery, he really hasn't been the same. He was extremely weak, could barely speak or open his eyes. It took weeks for him to begin talking again. He knew who everyone was, and was talking to us, but then he'd start talking about weird/random things, not making any sense to anybody except himself. He would get frustrated because we didn't understand him, he'd get agitated really easily. He kept saying he wanted to die, they put him on drugs for depression. He was refusing to eat any food, so they eventually had to put in a feeding tube.

That was last week. The infection had cleared up. He was doing better, aside from having the feeding tube, so they released him from the hospital and send him back to the physical therapy place to get walking again. He was there since Friday. The night he was admitted there, after FMIL left, he freaked out, yelling that he had been struck by lightning, and that he was going to murder the nurse, so they immediately transferred him to the Dementia ward. (keep in mind, he was completely normal mentally before all of this happened).

Anyway, when the doctor put in the feeding tube, he must've seen something suspicious in his esophagus, so they did a biopsy. (they had done biopsies in the past when they did the colonoscopy and the surgery and had never found anything). Well FMIL just got the call tonight - they found cancer in his esophagus.

As of now, we have no details as far as what type of cancer it is, or what stage it is, but needless to say, its not good. FFIL is 73 years old, he's been through hell with all of these surgeries (going back to Mother's day), he is still very weak, malnourished, etc. We really don't know if he'd be able to physically handle another surgery - even if the cancerous tumor could be removed that easily. God forbid he needs chemo or radiation, we really don't know if he'd be able to survive that :(

Its been a roller coster ride, and very difficult going through all of this. I've been trying to be supportive of FI through all of this (even though I don't agree with all of the things that FMIL has been doing through all of this). It has definitely been putting a strain on our relationship. At dinner tonight, before we heard about the cancer, FI was saying he really didn't think his father would be able to be at our wedding, and that he didn't even know if he'd still be alive by September :(

Please keep him in your prayers for us. I will keep you all updated.
Thanks...

Re: Please pray for FFIL...Update (Sort of)

  • edited December 2011
    I will keep you and your family in my thoughts and prayers.
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  • mbcdefgmbcdefg member
    10000 Comments 5 Love Its Combo Breaker
    edited December 2011
    Oh wow, how awful. I will keep him and all of you in my thoughts, hon.

    My dad has some similar colon/cancer issues, and he gets treatment at Sloan Kettering in NYC. Just wanted to put that our there in case you guys wanted a second opinion or something.
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  • bling81bling81 member
    Third Anniversary 10 Comments
    edited December 2011
    My Dad has been having some serious health issues himself.  The most recent is cancer, and he too is being treated at Sloan Kettering in the City also, we all love that place and think so highly of it.  I do not know if it is even something that you all would consider at this point. 

    I am sorry to hear of this, it must be very difficult.
  • kristen8040kristen8040 member
    Knottie Warrior 1000 Comments Combo Breaker
    edited December 2011
    Cindy, I am so sorry you and your FI are going through this.  T&P
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  • cindyn9178cindyn9178 member
    1000 Comments 5 Love Its
    edited December 2011
    Thanks girls... one of the things I mentioned is how I don't agree with some of FMIL's decisions.
    I personally think the hospital he's been at is awful. I don't like it at all.. I think they just aren't good doctors/nurses, from what we've seen there.(and it is dirty IMO). If it had been my husband/father at that hospital, I would've taken him out of there ASAP to a better hospital. I think they were very laid back about the entire thing, and it is questionable as to whether or not they actually caused the holes in his colon when they put the scope in (the surgeon said it was possible).

    Also, the physical therapy place he had gone to was awful. The first time he was there, before his colon had been removed, he was on a very strict diet, which they were not following at all. He was supposed to be there to get walking again, yet FMIL said they were only getting him for about 30 minutes every day, and she was the one walking him ever day when she visited. She had so many complaints about that place. Yet, this time when the hospital released him, she said they couldn't find a bed for him at another place, so she sent him back to that place again!! I personally thought that was dumb. FMIL seems more concerned with how far she has to drive to the place, instead of being concerned about his health, and getting him the best possible care!  It drives me crazy. I just don't understand her reasoning. If it were me, I'd make sure he was getting the best possible care we could get, regardless of how far I had to travel. I would deal with it, because his health would be more important to me, than the distance.

    It also bugs me how she never asks questions of the doctors. Most of the time, she is guessing about things when we ask her questions, or assuming things. If a doctor or a nurse tells her something, she doesn't ask any questions about it. Then when FI talks to her, and relays the info to me, and I ask him a bunch of questions (that I would've asked the doctor), he has no clue, because she didn't ask. I just don't get it. But I need to keep my mouth shut, because in the end, its not my place to say anything.

    So needless to say, judging by the past events, I highly doubt she'd send him to NYC for any treatment. If its not within a 10 minute drive of her house, he probably won't be going there.
  • kristen8040kristen8040 member
    Knottie Warrior 1000 Comments Combo Breaker
    edited December 2011
    I'm not sure where your in-laws are located but my best friend is an RN on the oncology floor at Valley hospital in Ridgewood.  Let me know if you need any info.
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  • cindyn9178cindyn9178 member
    1000 Comments 5 Love Its
    edited December 2011
    In Response to <a href="http://forums.theknot.com/Sites/theknot/Pages/Main.aspx/local-wedding-boards_new-jersey_please-pray-ffil?plckFindPostKey=Cat:Local%20Wedding%20BoardsForum:90Discussion:b5f52fe7-df18-4059-8e64-b2da0abec195Post:f701d40b-8b9c-4a84-94b2-4ba2aeda0fba">Re: Please pray for FFIL...</a>:
    [QUOTE]I'm not sure where your in-laws are located but my best friend is an RN on the oncology floor at Valley hospital in Ridgewood.  Let me know if you need any info.
    Posted by kristen8040[/QUOTE]
    Thanks.. they are actually in Brick..
  • jcg98jcg98 member
    1000 Comments Third Anniversary 5 Love Its Name Dropper
    edited December 2011
    I'm so sorry to hear about your FFIL.  T&P to you and your FI and his family!

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  • edited December 2011
    Cindy - I'm so so so sorry to hear all of that!  I can only imagine how difficult it must be for your FFIL, his family, and you - especially at this time in your life/relationship with FI.  I will keep all of you in my prayers and please keep us updated on his condition.  Hugs to you, girlie and if you need to talk or vent we're here for you!
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  • edited December 2011
    I am so sorry to hear you are going through this. I will keep your family in my prayers.
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  • cindyn9178cindyn9178 member
    1000 Comments 5 Love Its
    edited December 2011
    Thank you everyone for your kind words...
    Peaches - it is definitely extra difficult because of the timing of all of this. Obviously, FFIL's health is more important than our wedding, but it is just so much added stress at this time.. and it sucks that at this point, FI doesn't even know if his father will be around for our wedding, even though it is only a couple months away.
    Its crazy because my good friend got married last year (I was a BM), and they were going though a very similar situation with her FIL. He was suffering from Cancer and they werern't sure how long he was going to live. He ended up being able to attend the wedding in a wheel chair, with oxygen, but they were just so grateful that he was able to be there. He ended up passing away a few months later :(
    Hopefully we will have some updates today - and I'm praying it is somewhat good news, keeping my fingers crossed.
  • Faith2730Faith2730 member
    Eighth Anniversary 500 Comments Combo Breaker
    edited December 2011
    So sorry to hear this. I will keep both you and your family in my thoughts and prayers.
  • edited December 2011
    Thoughts and prayers are with you!
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  • mbcdefgmbcdefg member
    10000 Comments 5 Love Its Combo Breaker
    edited December 2011
    I'm also really sorry to hear that your FMIL isn't really helping matters here. Maybe she's in denial over this whole thing?

    I wonder if your FI could talk to someone about what it'd take for him to get power of attorney for his father? If FMIL isn't in the frame of mind right now to do the best possible things for FFIL, then maybe it's better if all the decision-making powers are transferred to your FI or another family member.

    Again, keeping you all in my thoughts.
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  • cindyn9178cindyn9178 member
    1000 Comments 5 Love Its
    edited December 2011
    In Response to <a href="http://forums.theknot.com/Sites/theknot/Pages/Main.aspx/local-wedding-boards_new-jersey_please-pray-ffil?plckFindPostKey=Cat:Local%20Wedding%20BoardsForum:90Discussion:b5f52fe7-df18-4059-8e64-b2da0abec195Post:0d59f7f5-d6a8-4b77-89fa-90892f764cc6">Re: Please pray for FFIL...</a>:
    [QUOTE]I'm also really sorry to hear that your FMIL isn't really helping matters here. Maybe she's in denial over this whole thing? I wonder if your FI could talk to someone about what it'd take for him to get power of attorney for his father? If FMIL isn't in the frame of mind right now to do the best possible things for FFIL, then maybe it's better if all the decision-making powers are transferred to your FI or another family member. Again, keeping you all in my thoughts.
    Posted by mbcdefg[/QUOTE]
    Yeah, I definitely think she is in denial about a lot of it.
    The problem is, I think FI takes after her in some ways, and he doesn't completely see the problem with the way she is, as much as I see it. If I do casually say something to him about how I don't agree with what she does, he gets angry and just blows it off. 

    There were many times we went to visit him at the hospital, and a doctor would come in and tell us something, and neither FMIL or FI would ask any questions, and I'd be sitting there with a million questions running through my head. Then afterwards, the two of them would start assuming things and acting like they were doctors and knew what they were talking about.

    So I really don't think that FI would agree that he needs power of attorney or anything like that - he really doesn't see anything wrong with the way his mom is handling stuff.

    She is also always worried about upsetting FI with bad news, so I wouldn't put it past her, that she knew about this for a few days and just hadn't told us yet.
    I find it very hard to believe that the doctor's office just called her last night and told her over the phone, with no other details for her. Don't they normally call you into the office to tell you something like "your husband has cancer"?

    Thanks for listening.. it was just all building up inside me, I really needed to share it with someone, but FI doesn't want our friends all involved in our business, so I couldn't really tell them. It is nice being able to come here and share this with all of you.
  • altimat873altimat873 member
    1000 Comments
    edited December 2011
    Sorry to hear about this, T&P xoxo
  • mbcdefgmbcdefg member
    10000 Comments 5 Love Its Combo Breaker
    edited December 2011
    Maybe you can talk to your FI and ask if he would mind if you asked questions and took notes for them at any other appointments. If he or FMIL object you could always say, "You guys must have a million emotions right now, and I know myself that that makes it so hard to concentrate on things. I figured I'd take notes so that you could process them later when you have time to sort things out."

    ?
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  • edited December 2011
    My thoughts and prayers are with you and your family.  Sorry to hear this.
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  • edited December 2011
    In Response to <a href="http://forums.theknot.com/Sites/theknot/Pages/Main.aspx/local-wedding-boards_new-jersey_please-pray-ffil?plckFindPostKey=Cat:Local Wedding BoardsForum:90Discussion:b5f52fe7-df18-4059-8e64-b2da0abec195Post:413181fa-2b09-4bd6-a0e4-423efae785fc">Re: Please pray for FFIL...</a>:
    [QUOTE]In Response to Re: Please pray for FFIL... : Thanks.. they are actually in Brick..
    Posted by cindyn9178[/QUOTE]

    We just went through something similar with my grandmother earlier this month. She lived with my parents in Howell. If he's in Brick hospital I would for sure have him moved out of there; the people at Monmouth Medical Center were wonderful with my grandmother.

    I thought her oncologist was a huge jerk, but another doctor in their practice was wonderful. This is their practice: <a href="http://monmouth-hemonc.com/">http://monmouth-hemonc.com/</a>   We are NOT a fan of Dr. Cohen but Dr. Ray was amazing with my grandmother. She was caring and thoughtful when telling my mother they'd exhausted all the options and my grandmother was dying. My grandmother passed so quickly even Dr. Ray was surprised, and she came up to hospice and cried with my family. She was great in that horrific situation.
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  • cindyn9178cindyn9178 member
    1000 Comments 5 Love Its
    edited December 2011
    In Response to <a href="http://forums.theknot.com/Sites/theknot/Pages/Main.aspx/local-wedding-boards_new-jersey_please-pray-ffil?plckFindPostKey=Cat:Local Wedding BoardsForum:90Discussion:b5f52fe7-df18-4059-8e64-b2da0abec195Post:5c4017c2-fd2f-425d-98d3-00b74c4a464e">Re: Please pray for FFIL...</a>:
    [QUOTE]In Response to Re: Please pray for FFIL... : We just went through something similar with my grandmother earlier this month. She lived with my parents in Howell. If he's in Brick hospital I would for sure have him moved out of there; the people at Monmouth Medical Center were wonderful with my grandmother. I thought her oncologist was a huge jerk, but another doctor in their practice was wonderful. This is their practice: <a rel="nofollow" href="http://monmouth-hemonc.com/">http://monmouth-hemonc.com/</a>    We are NOT a fan of Dr. Cohen but Dr. Ray was amazing with my grandmother. She was caring and thoughtful when telling my mother they'd exhausted all the options and my grandmother was dying. My grandmother passed so quickly even Dr. Ray was surprised, and she came up to hospice and cried with my family. She was great in that horrific situation.
    Posted by diamondx423[/QUOTE]
    Yes, he is in Brick Hospital. From the first day we went there, I said from the beginning, that if it were my dad or husband, I would have removed him from that hospital immediately. I don't like any of the doctors or nurses, or the hospital itself.
    But again, it really isn't up to me to make that kind of decision. I've expressed my concerns to FI, and FMIL seems perfectly ok with the hospital, so unfortunately, he will have to be treated there if that's what she wants.

    She had made a few comments recently, the first time he was in the physical therapy place, that it wasn't as a convenient drive for her from work, as she had hoped. Um, hello, does that really matter?? I guess to her it does.. don't get me wrong, I love FMIL and FFIL, they are both amazing people, but sometimes I just don't understand her reasoning.

    I guess we will see how this all plays out. As of now, still no more details or updates from the doctors, unless she just isn't telling us.

    *Edited for privacy*
  • cindyn9178cindyn9178 member
    1000 Comments 5 Love Its
    edited December 2011
    So, FMIL finally talked to the Oncologist.. he thinks FFIL is way too weak to even have the test done to look at the tumor and determine what stage it is.. let alone having surgery to remove it, or chemo at this point.
    He said he thinks the earliest they can even do the test is August... so for the next month.. I guess we just have to sit and wait :(
  • edited December 2011
    So sorry that you and your FI and his family are going through this.  You're all in my thoughts and prayers <3
  • cindyn9178cindyn9178 member
    1000 Comments 5 Love Its
    edited December 2011
    Thanks... yesterday,FMIL talked to the doctor who actually saw the tumor when he was putting the feeding tube in. He said its about the size of a half dollar.. no idea if that is good or bad. He also mentioned a test, and she thinks it is the same test the oncologist said he is too weak to have right now..

    I still just find it absolutely crazy that the doctor's office just called her to tell her the news, with no details, and then the doctors didn't even call her back for 2 days, and still barely explained anything to her. My dad had bladder cancer years ago, and when they found it, the doctor sat my mom and dad down in the office and explained EVERYTHING to them for over an hour. This is a huge part of the reason why I really don't like the hospital he was at....he might be weak right now, but they would rather let the cancer grow for at least another month before they even look at it again and determine what stage it is? It makes me want to pull my hair out!
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