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Wedding Woes

Been MIA because of work and "stuff"

Work is kicking my butt. We're trying to get a lot of corporate partner meetings before the end of the year and budgets close for donations. And I'm working on a ridiculously tedious project.

In other news, we had our meeting with the school district yesterday. DD ages out of Early Intervention at age 3 (because she's a January baby she's graced in EI until August 31) and before her birthday we needed to have her CPSE (Commitee of Preschool Special ED) IEP (Individual Education Plan) in place for September. I've been sweating this meeting because I've heard HORROR stories about how the district tries to really cut down the amount of services they'll cover. Not to mention that DD's evaluations were horrible and threw me into a serious funk. I know they're only snap shots of one moment of one day and that they're based on standardized tests, but it's a serious blow when you read that your 3 year old is at the developmental level of a 11-15 month old across the board.

So we went into this meeting and there was a slew of people. It was me and H, the Special Ed Super Intendant, a Special Ed teacher, a regular teacher, our on-going service coordinator, and the social worker from DD's current program. The first thing the Special Ed Super Intendant said to us was, "I've read the evaluations. Now tell me about her. What does she do, what doesn't she do?" H and I told him about things that weren't on the report. The social worker chimed in as did our coordinator. I think we painted a far more accurate picture and in the process we reassured ourselves a little more about what the evaluations missed. 

We came out of that meeting with a TON of services at school and services at home. Due to the nature of DD's progression and the fact that with brain injury there is never a clear path to how she will develop, it was decided that we'll meet tri-annually (even before she starts her new program in Sept) to make sure that we don't need to tweak any of her services. 

Re: Been MIA because of work and "stuff"

  • It sounds like they are being really proactive and genuinely trying to help you.  This is great.
  • Exactly, @6fsn. I was surprised and very pleased. I've been a wreck about this for weeks. It also seems that they're more flexible than Early Intervention is in terms of amount of services and how many types per day (example: DD is only able to have 1 gross motor therapy a day which means we're not able to get any PT at home).
  • I'm glad it went well.  It's great that you guys will meet again before she starts school so you can make sure she's getting the services she needs.

  • I think it's all about how you went in there to advocate for your kiddo.  You knew and understood that you had to really give a better idea of what she is like all around and not at one moment in one day-as you said.  You obviously blew their socks off, and kudos to you and your H.  Sounds like you did your homework and it showed. 

    This is a great sign, AND the tri-annual meetup is very exciting. 
  • Yay, I'm glad she'll be getting the services she needs!
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  • There usually are so many more services for young children in school than people would think. Esp on the elementary school level. My school has a unit for emotional disturbed students, and we've had a unit for Artistic students a few years ago. This is on the secondary level, but I do know that students with special needs are offered many services in our district.

    Hang in there, it is a process to deal with schools and ARD meetings, but you are such a great advocate for Lady M.

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  • I will say, H really takes the lead in these meetings. I do the ground work with the therapies and therapists, but he's the big talker in these things. 

    And I really loved hearing the whole committee agree that we need to bombard her with services and scale back if it becomes too much.
  • good for you, for getting the info you need and deserve. i'm sorry you have to be stressed going into these meetings because you cannot just EXPECT to get what you need because it's common sense. but you're a great mom so you know what you need for her.
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    Wzz said:
    good for you, for getting the info you need and deserve. i'm sorry you have to be stressed going into these meetings because you cannot just EXPECT to get what you need because it's common sense. but you're a great mom so you know what you need for her.
    I just thought this needed to be bolded and restated.  You're a great mom.
  • And with that, I'm crying. 

    Seriously, this would be a lot harder without you all and the fantastic group of ladies on TIP on the alterna-nest.
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