NWR: Two big health events in our family happened today.

theexactlee

Sad Vent

My 9 year old is very short. However since I'm very short and my husband is pretty short (I'm 4'10 and husband 5'6) we didn't expect the kids to be huge. However at a recent appt. the doctor noticed that he had completely fallen off the healthy upward curve of normal growth. He sent us in for what is called a bone age scan, which is basically where they take an x-ray of the hand and the doctor looks at the plates between the bones and learns the age the bones show. His showed up 2 years off. So then we did a myraid of blood work which showed nothing. Next step was called a stim test. Results came back today that he is basically not creating any of the growth hormone peptide, meaning he won't grow on his own. Terrifying. So now he has to take growth hormone injections. We are very upset about this as you can imagine. This poor kid has been a lab rat all his life. He was born with club foot and was put in a huge cast 10 minutes of of utero and has been tortured ever since. Now this. Just sad.

I had my tubes tied a few months ago because I am finished having children and I take 2 migraine medications that are class C and above and insurance won't cover them unless I'm on permanent birth control. Because of my migraines I can't take hormonal birth control. See the problem...so anyway, tubes tied. Now some really bad stuff happened after I had that done so I'm going in for what is called an ablation on Monday. After the ablation I will never be able to have a child. Tubals are reversible so there was always that little part of me that said if Robert Downey Jr. swept me off my feet and wanted to pay to reverse it I could give him all the kids in the world  But ablasions are forever, no turning back. That's a hard decision to make. So surgery Monday and basically a day or two down after. But of course everything just has to be so much more complicated when you have two children involved. 

Alright sorry about my long vent.

lyndausvi

::hugs::

I'm sorry to hear what you and your family is going through right now.  Vent all you want.

pinkshorts27

I'm sorry about your son and family. My brother (21 now) was born with two club feet. This was before the newer surgeries they have and they just fused his bones together.  His feet keep rotating outward and he has had double digits in surgeries. I helped him with his wheelchair in high school when he recovered from his surgeries.  As his sister, it was hard to watch.  I can't imagine as a parent. Your family is in my prayers. 

Senecaf

Oh goodness what a day. I'm sorry to hear about these things. My older child stopped growing for 9 months as a baby. From 9 months old to 18 month he didn't grow an inch or pound. We had to see specialist after specialist. It was scary. It turned out to be easily fixable. And he began to grow ever so slowly again.
I really feel for you. As a parent it is hard to see your child go through things. To add yet another thing to his your troubles has to be so tough.

Positive thoughts for you and your family.

beachyone15

So sorry to hear this. Prayers your way!

MrsMack10612

@theexactlee - I'm sorry for your all your troubles.

I had an ablation 4 years ago, if you want to chat about it feel free to PM me.

jenajjthr

Senecaf said:

Oh goodness what a day. I'm sorry to hear about these things. My older child stopped growing for 9 months as a baby. From 9 months old to 18 month he didn't grow an inch or pound. We had to see specialist after specialist. It was scary. It turned out to be easily fixable. And he began to grow ever so slowly again. I really feel for you. As a parent it is hard to see your child go through things. To add yet another thing to his your troubles has to be so tough. Positive thoughts for you and your family.

My niece did the same thing. They even tested her for pituitary dwarfism (I think that is what my sister called it). They said if she didn't start growing they would have to start injecting her with growth hormones. The same went with her teeth. They x-rayed and they were there, but they were not coming through. The dentist said we will need to do surgery if they don't come out on their own. 

OP, I'm sorry you are going through this. When it's your child the last thing you want them in is pain. I also feel your pain on the permanency of the no more children. Even if it's only a dream to have another child someday, our mind holds onto that possibility and hope. It's hard to let go of that and face reality. There will be good days and bad days. Good luck from here forward in all health issues!

climbingsingle

I'm very sorry to hear this. Sending you and your family good thoughts.

KatieinBkln

I hope you all feel better soon! That's all really hard.

If it's any consolation, my cousin had to take some growth hormone growing up. She is now a quite petite, but full-grown, happy, adult woman. Hopefully your son has a similar result!

SBmini

I'm really glad that they found what was wrong with your son and that it is something treatable. I'm a shorty too, so I know what it is like always being the shortest kid in the class and being mistaken as younger than I am.

Best of luck to you on your surgery on Monday. I'm sure everything will go fine. Hugs to you for needing to go through with that. 

gladyscf

I'm sorry. Seems like when it rains it pours. T & P's for you and your family.

I was facing an ablation surgery for some issues and opted for a hysterectomy instead. I wish you all the best with that!

Jells2dot0

So sorry for all of this. Medical issues suck.

I get the sadness about permanent birth control. I do not have kids, never wanted them, and never will. However, when the oncologist told me my chemo would cause infertility and there was no time to do any egg harvesting, I admit I didn't like that choice being taken away from me. I like having choices and being able to make my own decisions. So, while I'm totally okay with not being able to have kids now, I felt a level of sadness about the fact that it was out of my hands.