Weary Wednesday

VarunaTT

I have been sleeping hard.  We're down to one wakeup/night.  Harley is obsessed with my boxing machine (I think all of the padding feels nice on her claws).  She keeps getting her spring toys under it as well.  I think I'm going to cover it with a fitted sheet at night until it falls out of interest and see how that goes.  It's too heavy to move and I don't really want it someplace else.  I'm also having to get some slow feeders, b/c she's doing the "scarf and barf" thing now.  Honestly, I think she's truly hungry, but she's a tiny cat and is a solid 7.5 pounds, I really don't feel like i can feed her more.  She gets established with the vet at the end of the month (Saturday appointment), so I'll doublecheck with the vet.

Otherwise, SSDD.  The office move has pushed into high gear and I'm getting excited.  I am so looking forward to have loads of natural light (one wall is floor to ceiling windows, 12 feet of them!).  Plus it will feel like a fresh start, with furniture I've picked and an office I like, rather than one I just had to fit into.  I might even add some actual decor (I tend to leave my offices blank).

ei34

I've been sleeping hard too, while I'm asleep, but have been waking up earlier than usual.  It's usually fairly early (4:30-45ish) but this morning it was up for the day by 3:50, which was annoying.  Dropping off chili for a meal train this evening so I did get the corn bread baked with my extra time, one less thing to do after work at least.

mrsconn23

Good morning. DH got up at 5am-ish and woke me up because he dropped something in the bathroom.  I was sleeping hard and mid-dream.  I tried to remember the dream because it seemed odd, but kind of funny.  I cannot remember it, humph.  I did fall back asleep until my normal wake-up time, thankfully.    

I'm so glad we're leaving on a Tuesday for our TX trip because I haven't done jack to prepare for it and we're hosting BIL/SIL/nephews this weekend.  I will have Monday to ensure we are good to go. My younger sis is there right now for her visit (dad and older sis are going over Thanksgiving). Apparently, my grandpa has a list of stuff he wants DH to help him with, which is so cute.  Grandpa is one of DH's fave people in the whole world, so he'll do anything for him. 

SSDD otherwise.  

short+sassy

I didn't get enough sleep last night.  But that was my own fault for going to bed late.  I woke up with my alarm and was complaining to myself that I had to get up.  Then I remembered it's my WFH day and happily slept for 45 more minutes, lol.

I turned the heat on for the first time today!  Probably hasn't been on since Feb. or March.  The room is cozy and warm now.

levioosa

I have been so sleepy. Just absolutely brain fog sleepy the last few days. 

@VarunaTT there’s a spray you could put on the bag to dissuade the scratching. The cats really don’t like it. Tbh H and I hate it too, but it was effective. 

Met up with SIL B last night and heard about the engagement and I want to be happy and supportive, I really do, it’s just red flag central. I hope they are able to grow together and that there’s a long engagement. 

Otherwise not too much else is going on. Im trying to focus on the day but not getting very far. 

Oh and on Monday I had the most frustrating, sexist doctors appointment and I’m still in a funk about it. I finally got to pulmonology for the chronic shortness of breath I’ve had since COVID and I was told it was….GERD. Why not. Everything is GERD. He didn’t even want to order pulmonary function tests. “You just don’t know what GERD is, the tests will be normal.” Yeah, I’m sure GERD is what made my pulse ox drop to 79% during activity during COVID, and why it took me six months before I could hike without my pulse ox dropping below 90% every time I hit an incline. Sexist ass. This is why women die, and why women have way more advanced disease at final diagnosis. 

Casadena

I also slept super hard last night - N came in around 4 for snuggles and totally scared the crap out of me. 

Been busy at work the last couple days - it's nice. 

@levioosa what a dick. Hopefully you get some answers

banana468

I'm coming in from being off yesterday.  Chiquita had her 5th infusion yesterday and Chiquito had the mile run for his class.  Because I took off I managed to see him finish and then Chiquita and I camped in the infusion center in the hospital.  We are now enrolled in a study so her symptoms and care can be reviewed in combination with other kids who have IBD to undersetand treatment and ideally get her to remission faster.  Her symptoms are improving which is great and we had the best 5 week stretch since she was symptomatic.

Soccer season winds down over the next two weeks and now I need to sign up Chiquito for basketball.  I am SO greatful I WFH because without that I don't know how I'd keep up.   I already think tonight I'm sitting in front of the computer for extra long pre or post dinner.   

DH STILL has issues with his foot and the antibiotics he's on are not helping his cause.  I feel for the dude and know that health is a main trigger for his anxiety which doesn't help.   It would be great if our household could manage to go for a few months without major issue and I'm starting to wonder if our home is built on cursed ground.  

mrsconn23

Oh @banana468, that's so much.  Glad to hear that they got her in the study to get into remission faster. Fingers crossed. 

Boo on DH's foot not being better.  That's super stressful and scary since the abx aren't working.  Feet are nothing to mess with. 

And we are having a discussion in my mom group about being working parents, and how there aren't enough hours in the day, and how it's a lie that the most expensive part of raising kids is when they're in daycare, and that you feel like you want, and need, to be with your kids more as they get older.  ((hugs)) It's been a tough season for you, lady. 

banana468

mrsconn23 said:

Oh @banana468, that's so much.  Glad to hear that they got her in the study to get into remission faster. Fingers crossed. 

Boo on DH's foot not being better.  That's super stressful and scary since the abx aren't working.  Feet are nothing to mess with. 

And we are having a discussion in my mom group about being working parents, and how there aren't enough hours in the day, and how it's a lie that the most expensive part of raising kids is when they're in daycare, and that you feel like you want, and need, to be with your kids more as they get older.  ((hugs)) It's been a tough season for you, lady. 

Thank you!

I'm super grateful that when Chiquita was hospitalized I told my boss that I'd get the job done but don't make me attend meetings.  I had my laptop and the great beauty of not going anywhere for two weeks with a kid who had no desire to move is that I worked while I listened to copious Henry Danger reruns.   

But now both kids play soccer, they're both in scouts and I suppose everyone in this house needs to eat and have clean underwear (side note: I sometimes ponder if we could be cold-weather nudists just for the laundry savings; the IBD says at least underwear is a good idea for some.)

I'm grateful that we're getting Chiquita treated at a great teaching hospital.  By getting into the study it should compile her details with those of other kids and it's what we need to see.  She's feeling more normal and the goal is to get her to feel that way for as long as possible.   She's matured so much!

And yeah - for poor DH we don't know why there are these repeated issues of sores on his feet.  They annoy him but he's now worried that there's something auto immune triggering this when the two cultures from a month ago didn't find anything. 

short+sassy

@banana468, how long/often does Chiquita need to get infusions?  

I'm so glad to hear her health has continually been getting better.  Hopefully DH's foot will be getting better soon also.

Might be time to get out the sage for any potential ancient burial grounds on your land, lol.

banana468

short+sassy said:

@banana468, how long/often does Chiquita need to get infusions?  

I'm so glad to hear her health has continually been getting better.  Hopefully DH's foot will be getting better soon also.

Might be time to get out the sage for any potential ancient burial grounds on your land, lol.

Our understanding is that the infusions are going to be approximately every 5 weeks for now and for the next several years.  She had bloodwork drawn to be evaluated by an outside lab to determine the level of the biologic in her system and to confirm that her body isn't producing antibodies against it.    That may change the quantity and frequency of the dosing.  

We absolutely see a huge difference in her.   She's acting more like herself and her gut is acting more "normal".  She desperately wants to be more like other kids!

Based on the stats, we're told if this progresses the way they want she will continue the infusions until she's 17 and then she will have a second colonoscopy.  Considering she's only turning 13 in 6 weeks we have a way to go but also plenty of time to consider more evaluation.

short+sassy

banana468 said:

short+sassy said:

@banana468, how long/often does Chiquita need to get infusions?  

I'm so glad to hear her health has continually been getting better.  Hopefully DH's foot will be getting better soon also.

Might be time to get out the sage for any potential ancient burial grounds on your land, lol.

Our understanding is that the infusions are going to be approximately every 5 weeks for now and for the next several years.  She had bloodwork drawn to be evaluated by an outside lab to determine the level of the biologic in her system and to confirm that her body isn't producing antibodies against it.    That may change the quantity and frequency of the dosing.  

We absolutely see a huge difference in her.   She's acting more like herself and her gut is acting more "normal".  She desperately wants to be more like other kids!

Based on the stats, we're told if this progresses the way they want she will continue the infusions until she's 17 and then she will have a second colonoscopy.  Considering she's only turning 13 in 6 weeks we have a way to go but also plenty of time to consider more evaluation.

Poor Chiquita (and you)!  That's more frequent than I was expecting, but at least the infusion treatments are working and she can get back to her old self.  I hope as she gets older she'll have the same good results but with fewer treatments.

Our bodies change so much when we're tweens and teenagers anyway.  I know that can add an extra layer of uncertainty to how it can affect medical issues.

banana468

short+sassy said:

banana468 said:

short+sassy said:

@banana468, how long/often does Chiquita need to get infusions?  

I'm so glad to hear her health has continually been getting better.  Hopefully DH's foot will be getting better soon also.

Might be time to get out the sage for any potential ancient burial grounds on your land, lol.

Our understanding is that the infusions are going to be approximately every 5 weeks for now and for the next several years.  She had bloodwork drawn to be evaluated by an outside lab to determine the level of the biologic in her system and to confirm that her body isn't producing antibodies against it.    That may change the quantity and frequency of the dosing.  

We absolutely see a huge difference in her.   She's acting more like herself and her gut is acting more "normal".  She desperately wants to be more like other kids!

Based on the stats, we're told if this progresses the way they want she will continue the infusions until she's 17 and then she will have a second colonoscopy.  Considering she's only turning 13 in 6 weeks we have a way to go but also plenty of time to consider more evaluation.

Poor Chiquita (and you)!  That's more frequent than I was expecting, but at least the infusion treatments are working and she can get back to her old self.  I hope as she gets older she'll have the same good results but with fewer treatments.

Our bodies change so much when we're tweens and teenagers anyway.  I know that can add an extra layer of uncertainty to how it can affect medical issues.

They are frequent now because she was reaching the point earlier that the cramping and BMs were painful and frequent.  So this is helping her be more normal even if the infusions are frequent.

The *hope* is that she can manage this with diet into adulthood.  I also hope that as she ages she's going to find that her tastes change so food that can trigger is also less likely to be at the top of the list and the foods that she likes will be a longer list.