Thunderbirds are go!

Wonderw1fe

Hey btches, chemo starts on Thursday. Word. I'm ready to get this party momofukin started.

DH & I went to NIH to discuss the possibility of a clinical trial. It was *whack*. The research nurse was eating lunch when we showed up. She made us wait an hour before putting us in a conference room. And then the gaadamn doctor who was supposed to be doing the trial didn't show up at all. He got "caught up" in something else and wanted us to reschedule. Momofuku, reschedule?? WTF. Andplusalso, I'm not interested in teaching fvkcing people anything. I know they got all creamed in the shorts 'cause I'm a cancer patient who is otherwise healthy as a horse. But fvkc that. As soon as I heard the word "randomization", I knew that sht wasn't for me. Maybe if I were someone who'd been battling this for years and had run out of options but hello, I am not that person. NO ONE'S TREATED ME YET.

So, once DH & I got home, I called my oncology nurse and told her to get me in the gaadamn chemo schedule ASAP. I start Thursday at 8 am. Countdown to Cancer Free starts then. Set your timers, heifers!

nicoleg1982

::vibes for an easy Thursday::  Glad to see the asskicking has been scheduled.

hmonkey

zsazsa-stl

Clock is set.

I think it is a good idea to try conventional treaments first rather than to risk being a control patient in a study.

loveshine1

Hooray for chemo!! How long is each session? And how often will you be having treatments?

**O-Face**

Dang, that's rude.

Asshats obviously didn't know what kind of royalty you are.  LOL! 

Good luck!

MinM

::rolls up sleeves, does some stretches::

Let's do this thing! My timer has been set.

I'm sorry the clinical trial people were so lame. That is not cool. They should have been falling all over their damnselves for you.

*Candi*

:::easy Thursday vibes:::

You've so got this, Ww.

mrsconn23

::vibes for an easy process::  Take care of yourself Ww!!! 

TheDuckis

You've got this. ::vibes:: for a good Thursday.

PMeg819

Boo, NIH blows. Clinical trials are a good option but in all honesty...I'd go the same route you are.

Wonderw1fe

I go once every three weeks for 5-6 hours a day. It's a long day, but it's not very often. I can deal with that.

Also, the clinical people were all, "First we'll draw blood and do CT and PET scans and other tests. Then we'll get the pathology and THEN we start on the treatment that may or may not work." WTF again. I've spent the last 3 weeks getting blood drawn and scans done. They wanted me to essentially start all over again. Haylz Naw. I was like, "Y'all can kiss my narrow ass on that testing mess."

mrsconn23

In Response to <a href="http://forums.theknot.com/Sites/theknot/Pages/Main.aspx/special-topic-wedding-boards_wedding-woes_thunderbirds?plckFindPostKey=Cat:Special%20Topic%20Wedding%20BoardsForum:47Discussion:b24d4621-5cf4-47c5-9952-f5a5f70cb2d0Post:baecdf1c-5898-45b4-809a-7fb66a03ed78">Re: Thunderbirds are go!</a>:
[QUOTE] Also, the clinical people were all, "First we'll draw blood and do CT and PET scans and other tests. Then we'll get the pathology and THEN we start on the treatment that may or may not work." WTF again. I've spent the last 3 weeks getting blood drawn and scans done. They wanted me to essentially start all over again. Haylz Naw. I was like, "Y'all can kiss my narrow ass on that testing mess."
Posted by Wonderw1fe[/QUOTE]

Yeah, those bastards want their own baseline testing because God forbid they trust the testing your Dr's did just a week ago. 

hmonkey

i am a cynic.  they can't use the other dr's results because then they have to credit others in the paper they are going to write: "beating cancer the ww way: asses will be kicked, momofukus!"

PMeg819

They redo the testing because they want standarization. We send our labs to gigantor central labs. This means all the same equipment, same reference ranges, etc. The CT/PETs are also standardized, they actually use a measuring system called RECIST to measure tumor size and then see response rates after a few weeks. The only nice thing about the retesting is that it's free. A lot of patients like trials particulary because they don't pay for all those tests. And if you need a CBC every week...even with insurance that adds up. You can burn through coverage really quickly when you are getting scans every 6-8 weeks and blood draws weekly. Anyways...get yourself a ton of books, possibly some movies, and bring a blanket. And bring snacks. They always say they have snacks in the chemo room but their snacks suck.

6fsn

Get thee to kicking!!!  Good luck.

MNNEBride

Sorry you didn't have a good experience with the research folks - not all of us are rude

:::vibes::: for Thursday!

MrsMyrtle

I'll be sending out some mucho ass-kicking vibes on Thursday. *hugs*

ReturnOfKuus

"I think it is a good idea to try conventional treaments first rather than to risk being a control patient in a study."

THIS.  Oh my lord, this.

EdsdollfaceJen

Huzzahhh!! I'll be sending over some Thank you Lord for the healing that's ALREADY taking place prayers on Thursday WW!!

Butter Cookie

FTR, I just met a man who has never touched tobacco in his life and got lung cancer. When he went to the doctor they told him it was stage 4.
He's 4 years in remission and healthy as a horse. He did an experimental treatment wherin he took chemo for 8 hours a day, 5 days a week, and then 24 hours a day through a pump for several weeks or months.