My younger cousin has had this mystery disease for years. She gets severe, inexplicabe pain in various body parts--usually at times she's not getting enough attention. For example, at my grandmother's wake, she was 100% fine when we were just there with immediate family, but the moment the first guests arrived she put on a knee brace (that she just happened to have in her bag?) and started begging her mom for Advil.
Obviously, I'm not completely convinced it's real. I do think she has something, but that she plays it up when it's convenient. Anyway, I know one of the symptoms of Celiac Disease is chronic pain. So while my aunt was telling another "woe is me" story about how many doctors she's taken my cousin to I asked if she'd ever been tested. The answer? "Oh no, I don't think it's that."
Um, if your teenaged daughter had some undiagnosed illness for over 5 years, wouldn't you want to be tested for everything? Of course, she's also the pickiest eater in the world and the only foods she likes are pasta and bread, so a gluten free diet would suck for her. Which I'm sure is part of the reason she won't get tested.