I remember a girl on MTV's Real World had it---and, she didn't make it seem like it was life threatening; crap, she smoked all the time. I know it affects the lungs, but I didn't know how serious it could be until I started reading her blog.
In Response to <a href="http://forums.theknot.com/Sites/theknot/Pages/Main.aspx/wedding-boards_etiquette_kps-question?plckFindPostKey=Cat:Wedding%20BoardsForum:9Discussion:206cbd7d-ac05-405d-bda9-fac077de6b10Post:a98a5a35-3d26-4581-8dda-4c6d34921105">Re: KPS Question</a>: [QUOTE]I remember a girl on MTV's Real World had it---and, she didn't make it seem like it was life threatening; crap, she smoked all the time. I know it affects the lungs, but I didn't know how serious it could be until I started reading her blog. She was Canadian too, Nebb! Posted by RachNRich[/QUOTE] We used to have a friend with CF, and Adam could never smoke in the apartment if he was over because it would irritate his lungs so much, he had to have weekly treatments with a nurse and regularly get his lungs treated.
Love is like infinity: You can't have more or less infinity, and you can't compare two things to see if they're "equally infinite." Infinity just is, and that's the way I think love is, too.
Fred Rogers
yeah CF turns healthy lung into scar tissue until you don't have enough functional lung to survive. Really long and torturous disease
Love is like infinity: You can't have more or less infinity, and you can't compare two things to see if they're "equally infinite." Infinity just is, and that's the way I think love is, too.
Fred Rogers
The average life span of someone with CF is 35 y/o. It's a lot higher than it used to be, but it affects a lot more systems then people initially think.
That is sad. I was wondering what that post was about, too.
I love KPS, too. But some of them just break my heart. The new one about the poster being depressed---and getting passed over because of her SN? Sad panda.
In Response to <a href="http://forums.theknot.com/Sites/theknot/Pages/Main.aspx/wedding-boards_etiquette_kps-question?plckFindPostKey=Cat:Wedding%20BoardsForum:9Discussion:206cbd7d-ac05-405d-bda9-fac077de6b10Post:6cf36758-babc-462f-ac64-a9ef25af6b7e">Re: KPS Question</a>: [QUOTE]I think that people with CS rarely live past 30. I think I only know that because of Frankie on the Real World. Posted by jasmineh7777[/QUOTE]
I had to google her to find out---but she's who I was talking about. I swear she used to smoke on the show. I had no idea she died <img src="http://cdn.cl9.vanillaforums.com/downloaded/ver1.0/content/scripts/tinymce/plugins/emotions/images/smiley-frown.gif" border="0" alt="Frown" title="Frown" />
In Response to <a href="http://forums.theknot.com/Sites/theknot/Pages/Main.aspx/wedding-boards_etiquette_kps-question?plckFindPostKey=Cat:Wedding%20BoardsForum:9Discussion:206cbd7d-ac05-405d-bda9-fac077de6b10Post:fe1f4c10-c54c-46dd-a165-baf89c933164">Re: KPS Question</a>: [QUOTE]I love KPS, too. But some of them just break my heart. The new one about the poster being depressed---and getting passed over because of her SN? Sad panda. Posted by RachNRich[/QUOTE] Me too. I just wish people realized that even if we give people a hard time if they have a serious problem we will give them serious answers and be supportive. We arent monsters.
In Response to <a href="http://forums.theknot.com/Sites/theknot/Pages/Main.aspx/wedding-boards_etiquette_kps-question?plckFindPostKey=Cat:Wedding%20BoardsForum:9Discussion:206cbd7d-ac05-405d-bda9-fac077de6b10Post:07daf815-0188-4964-8048-679a957b1e88">Re: KPS Question</a>: [QUOTE]In Response to Re: KPS Question : Me too. I just wish people realized that even if we give people a hard time if they have a serious problem we will give them serious answers and be supportive. We arent monsters. Posted by Nebb[/QUOTE] I'm a monster...rawr
Short story about CF: My HS chem teacher's granddaughter has CF. In fact, he adopted her and raised her because her parent's couldn't take care of her. She must be about 19 now, and it breaks my heart when I think about her lifespan.
In Response to <a href="http://forums.theknot.com/Sites/theknot/Pages/Main.aspx/wedding-boards_etiquette_kps-question?plckFindPostKey=Cat:Wedding%20BoardsForum:9Discussion:206cbd7d-ac05-405d-bda9-fac077de6b10Post:a2791822-ef9b-496e-9a13-ee42d05b1d51">Re: KPS Question</a>: [QUOTE]In Response to Re: KPS Question : I'm a monster...rawr Posted by shellydiane820[/QUOTE] Everyone here is not a monster.
In Response to <a href="http://forums.theknot.com/Sites/theknot/Pages/Main.aspx/wedding-boards_etiquette_kps-question?plckFindPostKey=Cat:Wedding%20BoardsForum:9Discussion:206cbd7d-ac05-405d-bda9-fac077de6b10Post:be63d50f-5d2e-4465-bc9a-fefad92ae372">Re: KPS Question</a>: [QUOTE]In Response to Re: KPS Question : Everyone here is not a monster. Except Shelly. Posted by RachNRich[/QUOTE] :)
In Response to <a href="http://forums.theknot.com/Sites/theknot/Pages/Main.aspx/wedding-boards_etiquette_kps-question?plckFindPostKey=Cat:Wedding BoardsForum:9Discussion:206cbd7d-ac05-405d-bda9-fac077de6b10Post:a2791822-ef9b-496e-9a13-ee42d05b1d51">Re: KPS Question</a>: [QUOTE]In Response to Re: KPS Question : I'm a monster...rawr Posted by shellydiane820[/QUOTE]
Eva was a girl in her early 20's who had a double lung transplant because of her CS. Near the end of her life she couldn't be around many other people because she was really susceptible to catching other illnesses so she started talking on an online board and because super close to a few other people with CF. She was also involved with having a documentary made about her.
Nebb, she's from Burnaby BC.
And I didn't post the secret. I just happen to work for the same company she once did so I know about her through word of mouth.
In Response to <a href="http://forums.theknot.com/Sites/theknot/Pages/Main.aspx/wedding-boards_etiquette_kps-question?plckFindPostKey=Cat:Wedding%20BoardsForum:9Discussion:206cbd7d-ac05-405d-bda9-fac077de6b10Post:da58aa80-368d-4b28-b34f-43af88c2a3d8">Re: KPS Question</a>: [QUOTE]In Response to Re: KPS Question : Girl, you have some fabulous hair for a monster! Posted by Moneypenny424[/QUOTE] I feel like I should "rawr" with the hand motion.
In Response to <a href="http://forums.theknot.com/Sites/theknot/Pages/Main.aspx/wedding-boards_etiquette_kps-question?plckFindPostKey=Cat:Wedding BoardsForum:9Discussion:206cbd7d-ac05-405d-bda9-fac077de6b10Post:3c3c8450-981c-4f63-8586-f1ec203a2341">Re: KPS Question</a>: [QUOTE]Holy balls. The newest KPS is redic. Now THAT makes me sad---so for her, and her soon-to-be husband. Posted by RachNRich[/QUOTE]
I know, that one is rough. I know you may lose a lot of money, but it is ALWAYS better to call off a wedding when you knew you shouldn't get married than get divorced, IMHO.
In Response to <a href="http://forums.theknot.com/Sites/theknot/Pages/Main.aspx/wedding-boards_etiquette_kps-question?plckFindPostKey=Cat:Wedding BoardsForum:9Discussion:206cbd7d-ac05-405d-bda9-fac077de6b10Post:6d380a30-ac3d-462d-938f-f682a2137d85">Re: KPS Question</a>: [QUOTE]In Response to Re: KPS Question : I feel like I should "rawr" with the hand motion. Posted by shellydiane820[/QUOTE]
If I was better with photoshop, I'd have changed your hand in your pic to a Wolverine paw or something :)
Re: KPS Question
That makes that post so sad then. Its incredible how much strangers on the internet can touch someones life, huh.
She was Canadian too, Nebb!
[QUOTE]I remember a girl on MTV's Real World had it---and, she didn't make it seem like it was life threatening; crap, she smoked all the time. I know it affects the lungs, but I didn't know how serious it could be until I started reading her blog. She was Canadian too, Nebb!
Posted by RachNRich[/QUOTE]
We used to have a friend with CF, and Adam could never smoke in the apartment if he was over because it would irritate his lungs so much, he had to have weekly treatments with a nurse and regularly get his lungs treated.
She is putting new ones up as we speak
Fred Rogers
Fred Rogers
That is sad. I was wondering what that post was about, too.
137
I just want to also say I love KPS, I just cant express how much I enjoy these.
[QUOTE]I think that people with CS rarely live past 30. I think I only know that because of Frankie on the Real World.
Posted by jasmineh7777[/QUOTE]
I had to google her to find out---but she's who I was talking about. I swear she used to smoke on the show. I had no idea she died <img src="http://cdn.cl9.vanillaforums.com/downloaded/ver1.0/content/scripts/tinymce/plugins/emotions/images/smiley-frown.gif" border="0" alt="Frown" title="Frown" />
[QUOTE]I love KPS, too. But some of them just break my heart. The new one about the poster being depressed---and getting passed over because of her SN? Sad panda.
Posted by RachNRich[/QUOTE]
Me too. I just wish people realized that even if we give people a hard time if they have a serious problem we will give them serious answers and be supportive. We arent monsters.
[QUOTE]In Response to Re: KPS Question : Me too. I just wish people realized that even if we give people a hard time if they have a serious problem we will give them serious answers and be supportive. We arent monsters.
Posted by Nebb[/QUOTE]
I'm a monster...rawr
Bio
[QUOTE]In Response to Re: KPS Question : I'm a monster...rawr
Posted by shellydiane820[/QUOTE]
Everyone here is not a monster.
Except Shelly.
[QUOTE]In Response to Re: KPS Question : Everyone here is not a monster. Except Shelly.
Posted by RachNRich[/QUOTE]
:)
[QUOTE]In Response to Re: KPS Question : I'm a monster...rawr
Posted by shellydiane820[/QUOTE]
Girl, you have some fabulous hair for a monster!
My Married Bio
[QUOTE]In Response to Re: KPS Question : Girl, you have some fabulous hair for a monster!
Posted by Moneypenny424[/QUOTE]
I feel like I should "rawr" with the hand motion.
[QUOTE]Holy balls. The newest KPS is redic. Now THAT makes me sad---so for her, and her soon-to-be husband.
Posted by RachNRich[/QUOTE]
I know, that one is rough. I know you may lose a lot of money, but it is ALWAYS better to call off a wedding when you knew you shouldn't get married than get divorced, IMHO.
My Married Bio
[QUOTE]In Response to Re: KPS Question : I feel like I should "rawr" with the hand motion.
Posted by shellydiane820[/QUOTE]
If I was better with photoshop, I'd have changed your hand in your pic to a Wolverine paw or something :)
My Married Bio