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Thunderbirds are go!

Wonderw1feWonderw1fe
1000 Comments Combo Breaker
in Wedding Woes
Hey btches, chemo starts on Thursday. Word. I'm ready to get this party momofukin started.

DH & I went to NIH to discuss the possibility of a clinical trial. It was *whack*. The research nurse was eating lunch when we showed up. She made us wait an hour before putting us in a conference room. And then the gaadamn doctor who was supposed to be doing the trial didn't show up at all. He got "caught up" in something else and wanted us to reschedule. Momofuku, reschedule?? WTF. Andplusalso, I'm not interested in teaching fvkcing people anything. I know they got all creamed in the shorts 'cause I'm a cancer patient who is otherwise healthy as a horse. But fvkc that. As soon as I heard the word "randomization", I knew that sht wasn't for me. Maybe if I were someone who'd been battling this for years and had run out of options but hello, I am not that person. NO ONE'S TREATED ME YET.

So, once DH & I got home, I called my oncology nurse and told her to get me in the gaadamn chemo schedule ASAP. I start Thursday at 8 am. Countdown to Cancer Free starts then. Set your timers, heifers!
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Re: Thunderbirds are go!

  • nicoleg1982nicoleg1982 member
    5000 Comments
    edited December 2011
    ::vibes for an easy Thursday::  Glad to see the asskicking has been scheduled.
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  • hmonkeyhmonkey member
    Ninth Anniversary 10000 Comments 500 Love Its Name Dropper
    edited December 2011

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  • zsazsa-stlzsazsa-stl member
    Eighth Anniversary 5000 Comments 100 Love Its First Answer
    edited December 2011
    Clock is set.

    I think it is a good idea to try conventional treaments first rather than to risk being a control patient in a study.
    image

    I just a friendly gal looking for options.

    Wedding Countdown Ticker
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  • loveshine1loveshine1 member
    Ninth Anniversary 5000 Comments 25 Love Its
    edited December 2011
    Hooray for chemo!! How long is each session? And how often will you be having treatments?
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  • **O-Face****O-Face** member
    10000 Comments Sixth Anniversary 25 Love Its
    edited December 2011
    Dang, that's rude.

    Asshats obviously didn't know what kind of royalty you are.  LOL! 

    Good luck!
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  • MinMMinM
    10000 Comments
    edited December 2011

    ::rolls up sleeves, does some stretches::

    Let's do this thing! My timer has been set.

    I'm sorry the clinical trial people were so lame. That is not cool. They should have been falling all over their damnselves for you.

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  • *Candi**Candi* member
    1000 Comments
    edited December 2011
    :::easy Thursday vibes:::

    You've so got this, Ww.
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  • mrsconn23mrsconn23 member
    Knottie Warrior 10000 Comments 500 Love Its First Answer
    edited December 2011
    ::vibes for an easy process::  Take care of yourself Ww!!!  :)
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  • TheDuckisTheDuckis member
    Seventh Anniversary 5000 Comments 25 Love Its Name Dropper
    edited December 2011
    You've got this. ::vibes:: for a good Thursday.
    photo DSC_2244copy.jpg
    Crap...I Mean Crafts
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  • PMeg819PMeg819 member
    Knottie Warrior 5000 Comments 500 Love Its First Answer
    edited December 2011
    Boo, NIH blows. Clinical trials are a good option but in all honesty...I'd go the same route you are.
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  • Wonderw1feWonderw1fe
    1000 Comments Combo Breaker
    edited December 2011

    I go once every three weeks for 5-6 hours a day. It's a long day, but it's not very often. I can deal with that.

    Also, the clinical people were all, "First we'll draw blood and do CT and PET scans and other tests. Then we'll get the pathology and THEN we start on the treatment that may or may not work." WTF again. I've spent the last 3 weeks getting blood drawn and scans done. They wanted me to essentially start all over again. Haylz Naw. I was like, "Y'all can kiss my narrow ass on that testing mess."

    ..
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  • mrsconn23mrsconn23 member
    Knottie Warrior 10000 Comments 500 Love Its First Answer
    edited December 2011
    In Response to <a href="http://forums.theknot.com/Sites/theknot/Pages/Main.aspx/special-topic-wedding-boards_wedding-woes_thunderbirds?plckFindPostKey=Cat:Special%20Topic%20Wedding%20BoardsForum:47Discussion:b24d4621-5cf4-47c5-9952-f5a5f70cb2d0Post:baecdf1c-5898-45b4-809a-7fb66a03ed78">Re: Thunderbirds are go!</a>:
    [QUOTE] Also, the clinical people were all, "First we'll draw blood and do CT and PET scans and other tests. Then we'll get the pathology and THEN we start on the treatment that may or may not work." WTF again. I've spent the last 3 weeks getting blood drawn and scans done. They wanted me to essentially start all over again. Haylz Naw. I was like, "Y'all can kiss my narrow ass on that testing mess."
    Posted by Wonderw1fe[/QUOTE]

    Yeah, those bastards want their own baseline testing because God forbid they trust the testing your Dr's did just a week ago. 
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  • hmonkeyhmonkey member
    Ninth Anniversary 10000 Comments 500 Love Its Name Dropper
    edited December 2011
    i am a cynic.  they can't use the other dr's results because then they have to credit others in the paper they are going to write: "beating cancer the ww way: asses will be kicked, momofukus!"
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  • PMeg819PMeg819 member
    Knottie Warrior 5000 Comments 500 Love Its First Answer
    edited December 2011
    They redo the testing because they want standarization. We send our labs to gigantor central labs. This means all the same equipment, same reference ranges, etc. The CT/PETs are also standardized, they actually use a measuring system called RECIST to measure tumor size and then see response rates after a few weeks. The only nice thing about the retesting is that it's free. A lot of patients like trials particulary because they don't pay for all those tests. And if you need a CBC every week...even with insurance that adds up. You can burn through coverage really quickly when you are getting scans every 6-8 weeks and blood draws weekly. Anyways...get yourself a ton of books, possibly some movies, and bring a blanket. And bring snacks. They always say they have snacks in the chemo room but their snacks suck.
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  • 6fsn6fsn member
    Knottie Warrior 10000 Comments 500 Love Its Name Dropper
    edited December 2011
    Get thee to kicking!!!  Good luck.
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  • MNNEBrideMNNEBride member
    Knottie Warrior 2500 Comments 500 Love Its First Answer
    edited December 2011
    Sorry you didn't have a good experience with the research folks - not all of us are rude ;)

    :::vibes::: for Thursday!
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  • MrsMyrtleMrsMyrtle member
    1000 Comments
    edited December 2011
    I'll be sending out some mucho ass-kicking vibes on Thursday. *hugs*
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  • ReturnOfKuusReturnOfKuus member
    Eighth Anniversary 5000 Comments 500 Love Its Name Dropper
    edited December 2011
    "I think it is a good idea to try conventional treaments first rather than to risk being a control patient in a study."

    THIS.  Oh my lord, this.
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  • EdsdollfaceJenEdsdollfaceJen
    100 Comments
    edited December 2011
    Huzzahhh!! I'll be sending over some Thank you Lord for the healing that's ALREADY taking place prayers on Thursday WW!!
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  • Butter CookieButter Cookie member
    2500 Comments
    edited December 2011
    FTR, I just met a man who has never touched tobacco in his life and got lung cancer. When he went to the doctor they told him it was stage 4.
    He's 4 years in remission and healthy as a horse. He did an experimental treatment wherin he took chemo for 8 hours a day, 5 days a week, and then 24 hours a day through a pump for several weeks or months.
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