WR Question

barbie92 · May 2011

No its not my name...it is my dogs name... I loved Barbies when I was little! I haven't ever met anyone named Barbie before!

KJB- Yeah one of my biggest problems right now is people thinking it is all in my head and I just want attention. It is like yup you caught me... I enjoy not being able to walk at a normal speed, not being able to do my own hair, and I sure love needing help to shower! Ha! I just wish there was more awareness out there I guess.

niquemel · May 2011

How about someone (DJ maybe?) annoncing that "the bride's fibromyalgia is not being kind so no hugging the bride, please. We wouldn't want to cause her any pain on her big day." So when someone tries, be like "no hugging, remember? causes a lot of pain. stupid fibromyalgia"

niquemel · May 2011

that announcement (either in the program or the DJ) would help raise awareness.
If someone is willing to give up hugs on their big day, then it's definitely serious. You're already the bride, you don't need attention that day. If anyone believes otherwise, well, "those you care don't matter and those who matter don't care" (and by care I mean think you're making it up.

SirJuliusVonHaast · May 2011

FWIW whenever I hug a bride I do it as delicately as possible and not at all like a regular hug (because of the dress, hair, and makeup). If people do try to hug you, hopefully it will be a delicate bride hug.

I'm sure it's only equivalent to a tiny fraction of what you're going through, but I have had a lot of people think that when I have migraines I am just being dramatic about having a headache and/or being lazy. Trust me, I would rather be off working or doing whatever it is I'm invited to rather than being curled up in a painful ball at home.

MissOwl · May 2011

barbie, i don't know if this helps but i read in a blog a long time ago about a bride who had fibro and she did something that i thought was brilliant. after the wedding, she and her husband stood behind a small table. her husband scooped ice cream into a small dish and she stood behind the toppings, saying hello to her guests. they could reach over to kiss her cheek or shake her hand but couldn't hug her. i thought it was so smart. you could do something like that---hand out some sort of treat and put a physical object between you and your guests? perhaps wear an apron

good luck!

SilverLining1 · May 2011

In Response to <a href="http://forums.theknot.com/Sites/theknot/Pages/Main.aspx/wedding-boards_etiquette_wr-question-1?plckFindPostKey=Cat:Wedding%20BoardsForum:9Discussion:ea0c7301-c7a9-4dfa-b996-d7414b2e558aPost:dcb17c69-bc76-4125-ad4b-f3ed5731b032">Re: WR Question</a>:
[QUOTE]I can be your bodyguard, you can be my loooonnnnggg loooosssttt ppaaaallll.
Posted by crfische[/QUOTE]

<div>And Betty when you call me you can call meeee Aaaaall.</div><div>
</div><div>Okay, Barbie. First, I'm really sorry that you're dealing with this. I'm sure that fending off hugs is the last thing that you want to do on your wedding day. However, I think that you should give the program option a bit more consideration. I think that it's the easiest, most direct, no-nonsense way to get the point across. I can understand that you're a bit embarrassed, but you have no reason to be. The people at your wedding care about you and want you to be comfortable. It's more likely that it'll be an awkward situation if you try to avoid any explanation. I hope that whatever you choose to do works out so that you can enjoy your wedding to the fullest!</div><div>
</div><div>ETA that anyone who thinks that you're making this up for attention deserves a swift kick in the arse.</div>

badkittyct · May 2011

I would have family and friends spread the word verbally to whomever it concerns so they know a hand shake or kiss on the cheek is more appropriate.

KellyBrian2013 · May 2011

In Response to <a href="http://forums.theknot.com/Sites/theknot/Pages/Main.aspx/wedding-boards_etiquette_wr-question-1?plckFindPostKey=Cat:Wedding BoardsForum:9Discussion:ea0c7301-c7a9-4dfa-b996-d7414b2e558aPost:0a5c3548-e8fc-44dc-a9ec-6960faf6803b">Re: WR Question</a>:
[QUOTE]And Barbie, you have absolutely no reason to be embarassed.
Posted by kellyjellybelly[/QUOTE]

This.

My mom was diagnosed with fibro a few years ago... it was really bad for a while, but it has since gotten better since she was put on meds that really help. My grandma (her mom) has also been diagnosed with it...

... it is becoming more common and people are hearing of it more now than they used to. People should understand.

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